Stephanie Russo Carroll

Interests

Teaching

American Indian, Alaska Native, Indigenous health policy,data governance

Research

health and the environment, climate change, governance, American Indian, Alaska Native, Indigenous, sovereignty, community wellness, community development

Courses

Scholarly Contributions

Chapters

• Lovett, R., Lee, V., Kukutai, T., Cormack, D., Rainie, S. C., & Martin, J. (2019). Good Data Practices for Indigenous Data Sovereignty and Governance. In Good Data(pp 26-38). Amsterdam: Institute of Network Cultures.
• Rainie, S. C., Kukutai, T., Walter, M., Axelsson, P., Walker, J., & Figuaroa, O. (2019). Open Data & Indigenous Data Sovereignty. In The State of Open Data.
• Rainie, S. C., Kukutai, T., Walter, M., Axelsson, P., Walker, J., & Figuaroa, O. (2018). Public draft: Open Data & Indigenous Data Sovereignty. In The State of Open Data.

Journals/Publications

• Garrison, N., Hudson, M., Ballentine, L., Garba, I., Martinez, A., Taualii, M., Arbour, L., Caron, N. R., & Rainie, S. C. (2019). Genomic Research through an Indigenous Lens: Understanding the Expectations. Annual Review of Genomics and Human Genetics, 20.
• Jäger, M. B., Behe, C., Ferguson, D. B., Huntington, O., Cora, A., Johnson, M. K., Johnson, N., Juan, A., Larson, S., Pulsifer, P., Reader, T., Strawhacker, C., Walker, A., Whiting, D., Wilson, J., Yazzie, J., & Rainie, S. C. (2019). Building an Indigenous Foods Knowledges Network Through Relational Accountability. Journal of Agriculture, Food Systems, and Community Development.
• Rainie, S. C., Rodriguez-Lonebear, D., & Martinez, A. (2019). Indigenous Data Governance: Strategies from United States Native Nations. Data Science Journal.
• Rainie, S. C., & Stull, G. (2017). Reframing Return on Investments for Tribal Colleges and Universities: Aligning Analyses with Tribal Priorities and Educational Missions. ETS Research Report Series, 18-26. doi:10.1002/ets2.12187
• Rainie, S. C., Schultz, J. L., Briggs, E., Riggs, P., & Palmanteer-Holder, N. L. (2017). Data as Strategic Resource: Self-Determination and the Data Challenge for United States Indigenous Nations. The International Indigenous Policy Journal.
• Rainie, S. C., Jorgensen, M. R., Cornell, S. E., & Arsenault, J. (2015). The Changing Landscape of Health Care Provision to American Indian Nations. American Indian Culture and Research Journal, 9(1), 1-23. doi:http://dx.doi.org/10.17953/aicr.39.1.j1u030g668113403
• De La Rosa, J. S., & Rainie, S. C. (2014). The Strategic Power of Data: A Key Aspect of Sovereignty. The International Indigenous Policy Journal , 5(1).
• Cornell, S. E., Jorgensen, M. R., Rainie, S. C., Record, I., Seelau, R., & Starks, R. R. (2008). Per capita distributions of American Indian tribal revenues: A preliminary discussion of policy considerations. Joint Occasional Papers on Native Affairs (JOPNA).
  More info

  Cornell, Stephen, Miriam Jorgensen, Stephanie Carroll Rainie, Ian Record, Ryan Seelau, & Rachel Rose Starks. (2008). Per capita distributions of American Indian tribal revenues: A preliminary discussion of policy considerations. Joint Occasional Papers on Native Affairs (JOPNA). Tucson, AZ and Cambridge, MA: Udall Center for Studies in Public Policy and Harvard Project on American Indian Economic Development.

Proceedings Publications

• Stull, G., & Rainie, S. C. (2016, Spring). Reframing Return on Investments for Tribal Colleges and Universities: Aligning Analyses with Tribal Priorities and Educational Missions. In National MSI Return on Investment Convening, Princeton: ETS and PENN Center for Minority Serving Institutions.

Presentations

• Anderson, J., & Carroll, S. R. (2020, February). The CARE Principles and Biocultural (BC) Labels. NYU Public Interest Technology Alliance Launch. New York, NY: New York University.
• Carroll, S. R. (2020, February). Enhancing Genomic Research in the US Through the Lens of Indigenous Data Sovereignty. Innovation Policy Colloquium,. New York, NY: New York University School of Law.
• Carroll, S. R. (2019, April). The Significance of Indigenous Data Sovereignty. Indigenous Data Sovereignty Summit in Arizona. Phoenix, AZ.
• Carroll, S. R. (2019, July). The Significance of Indigenous Data Sovereignty”. Border Latino and American Indian Summer Exposure to Research (BLAISER). Tucson, AZ: University of Arizona College of Medicin.
• Carroll, S. R. (2019, May). Indigenous Data Sovereignty and Genomics Research. Indigenous Initiatives in Genome Research Workshop. New York City, NY: Nature Research Publications.
• Carroll, S. R., & Hudson, M. (2019, July). The CARE Principles for Indigenous Data Governance. International Law, The United Nations Declaration of the Rights of Indigenous Peoples and Indigenous Data Sovereignty Workshop. Oñati, Spain.
• Carroll, S. R., Jager, M. B., & David-Chavez, D. (2019, May). Mary Beth Jäger, Dominque M. David-Chavez, “The Significance of Indigenous Data Sovereignty and Governance,”. American Indian and Alaska Native Working Group Meeting. webinar: National Aeronautics and Space Administration.
• Cormack, D., Kukutai, T., Carroll, S. R., & Walter, M. (2019, September). Indigenous responses to datafication and data colonialism: Indigenous Data Sovereignty movements in Aotearoa New Zealand, Australia and the United States (A-318). 3rd Data Power Conference. Bremen, German.
• Jennings, L., Jäger, M. B., Johnson, N., & Carroll, S. R. (2019, December). The Indigenous Foods Knowledges Network: Building Indigenous Led Collaborations across Biomes. American Geophysical Union Fall Conference PA54A Growing Pains: Overcoming Obstacles and Working Together to Improve Research Collaboration in Science I Session. San Francisco, CA: American Geophysical Union Conference.
• Carroll, S. R. (2018, October). Indigenous data sovereignty: An Update from the Field. University of New Mexico Tribal Data Champions. Albuquerque, NM.
• Cormack, D., Kukutai, T., Rainie, S. C., & Walter, M. (2018, May). Indigenous Responses to Datafication: Indigenous Data Sovereignty Movements. Data Justice 2018: Exploring Social Justice in and Age of Datafication. Cardiff.
• Garcia, J., Echohawk, A., Rainie, S. C., Rodriguez-Lonebear, D., & Suina, M. (2018, June). The Governance of Indigenous Data: Generating a Framework and Principles. National Congress of American Indian Policy Research Center Pre-Conference Data Institute. Kansas City.
• Jennings, L., David-Chavez, D., & Rainie, S. C. (2018, October). Indigenous Data Sovereignty: How Scientists and Researchers Can Empower Indigenous Data Governance. American Indian Science and Engineering Society National Conference. Oklahoma City.
• Rainie, S. C. (2018, Fall). Indigneous Data Sovereignty & Open Data. International Open Data Conference. Buenos Aires.
• Rainie, S. C. (2018, Fall). Stewarding Indigenous Data: Resolving Tensions between Open Data and Indigenous Data Sove. University of Arizona Open Access Week: Should Research Data Always Be Open?. Tucson, AZ: University of Arizona Libraries.
• Rainie, S. C. (2018, November). Updates from the US Indigenous Data Sovereignty Network. “Indigenous Data Sovereignty in the Global South, Rural areas, and Developing Countries” International Indigenous Data Sovereignty Interest Group session at the Research Data Alliance Plenary part of International Data Week. Gaborone, Botswana.
• Rainie, S. C. (2018, Summer). Indigenous Data Sovereignty: How Scientists and Researcher Can Empower Data Governance. Earth Science Information Partners 2018 Summer Meeting. Tucson, AZ.
• Rainie, S. C. (2018, Summer). Reclaiming Indigenous Wellbeing: Health and Healthcare for Native Americans. Border Latino and American Indian Summer Exposure to Research (BLAISER), University of Arizona College of Medicine.
• Rainie, S. C., & Rodriguez-Lonebear, D. (2018, March). Indigenous Data Sovereignty: RDA Recommendations for Indigenous Data Governance. Research Data Alliance 11th Plenary. Berlin.
• Rainie, S. C., & Walter, M. (2018, November). An Introduction to Indigenous Data Sovereignty and its Implications for the Governance of Indigenous Data. “Indigenous Data Sovereignty: Science, Research, and the Governance of Indigenous Data” panel at the Scientific Data Conference part of International Data Week. Gaborone, Botswana.
• Rainie, S. C., & Zuniga Aponte, A. G. (2018, September). "Indigenous Data Sovereignty” presentation at the Indigenous Data Sovereignty Big Picture Session. International Open Data Conference. Buenos Aires.
• Rainie, S. C., Ferguson, D. B., & Martinez, A. (2018, December). Resilience, Sustainability, and Indigenous Communities: Knowledges in Dialogue for Environmental Research, Assessment, and Planning (Abstract ID 399127). PA53A: Native Science to Action: How Indigenous Perspectives Inform, Diversify, and Build Capacity in Environmental Science and Policy I session at the American Geophysical Union Conference. Washington DC.
• Rainie, S. C., Jennings, L., & Begay, R. (2018, April). Indigenous Data Sovereignty: How Scientists and Researchers Can Empower Indigenous Data Governance. American Indian Science and Engineering Society Region 3 Conference. Tucs.
• Rainie, S. C., Li, J., & Villatoro, D. (2018, Fall). "Indigenous Data Sovereignty" presentad at the Data + Indigenous Impact Session. International Open Data Conference 2018. Buenos Aires.
• Rainie, S. C., Strawhacker, C., Johnson, N., Pulsifer, P., Ferguson, D. B., Reader, T., Jäger, M. B., & Huntington, O. (2018, December). The Indigenous Foods Knowledges Network: Supporting Indigenous Scholars through Research and Academic Innovations (Abstract ID 451206). ED13A: From Either/or to Yes/and: Increasing Indigenous Participation in Science by Simultaneously Cultivating STEM and Cultural Identities II session at the American Geophysical Union Conference. Washington DC.
• Walker, J., Healy, B., Apsassin, T., Wadsworth, W., Jones, C., Reading, J., Lemchuk-Favel, L., Lovett, R., Cormack, D., Rainie, S. C., Rodriguez-Lonebear, D., & Rowe, R. (2018, September). Perspectives on Linkage Involving Indigenous Data Sovereignty. International Population Data Linkage Conference. Banff.
• Jorgensen, M. R., & Rainie, S. C. (2017, July). Data Initiatives at the University of Arizona and the Harvard Project. Data for Indian Economic Development Workshop. Tucson, AZ: Tribal-Interior Budget Council (TIBC), Department of Interior.
• Rainie, S. C. (2017, February). Center for Indigenous Environmental Health Research. Convening for Indigenous Australian Scholars, The University of Arizona. Tucson, AZ: Global Initiatives, University of Arizona.
• Rainie, S. C. (2017, February). Nation Building for Wellness: Tribal Data Sovereignty for Healthy Indigenous Communities. Community, Environment and Policy Department Meeting. Tucson, AZ: Mel and Enid Zuckerman College of Public Health, The University of Arizona.
• Rainie, S. C. (2017, October). Data Governance: Towards Indigenous Data Sovereignty.. Victoria Aboriginal Community Controlled Health Organization, Inc., Members Meeting. Lakes Entrance, VIC, Australia.
• Rainie, S. C., & Martinez, A. (2017, June). Indigenous Data Sovereignty: Opportunities for Tribal/Federal Collaboration. Society of American Indian Government Employees “Standing Together” conference. Scottsdale, AZ.
• Rainie, S. C., & Rodriguez-Lonebear, D. (2017, June). United States Indigenous Nation Data Governance: Toward Data Sovereignty. National Congress of American Indians Policy Research Center Mid-Year Pre-Conference Data Partners Gathering. Uncasville, CT.
• Rainie, S. C., & Rodriguez-Lonebear, D. (2017, May). United States Indigenous Nation Data Governance: Toward Data Sovereignty. Policy Forum: The Governance of Indigenous Data. Los Angeles, CA: Native Nations Institute at the University of Arizona, the University of California Los Angeles, and the US Indigenous Data Sovereignty Network.
• Rainie, S. C., & Rodriguez-Lonebear, D. (2017, September). Introduction to Indigenous Data Sovereignty and Governance. International Indigenous Data Sovereignty Interest Group session, "Generating Principles and Best Practices in Indigenous Data Sovereignty" at the Research Data Alliance 10th Plenary. Montreal, Quebec.
• Rainie, S. C., Garrison, N., & Hudson, M. (2017, July). Indigenous Data Sovereignty: Research, Ethics, and Genetics. University of Arizona Summer Internship for Indigenous Peoples in Genetics (SING). Tucson, AZ.
• Rodriguez-Lonebear, D., & Rainie, S. C. (2017, June). Laying the Groundwork: Why Tribes Need Data and Research. “Building Tribal Data Infrastructure” breakout session as part of the National Congress of American Indians Policy Research Center’s Tribal Leaders/Scholars Forum “Sovereign Infrastructure: Building Our Communities through Our Values”. Uncasville, CT.
• Rainie, S. C. (2015, November). Co-Production of Knowledge and Research Process. Weaving Together Two Worlds: Alaska Fish and Wildlife Co-Management Forum. Fairbanks, AK: University of Alaska, Fairbanks.
• Rainie, S. C. (2016, October). Center for Indigenous Environmental Health Research. Land Recycling and New Tools for Creating Healthy Communities and Economic Growth Workshop. Tucson, AZ.
• Rainie, S. C. (2016, September). Indigenous Data and Information Sovereignty: Making Open Data Work for Indigenous Peoples. Research Data Alliance (RDA) Breakout Session, International Data Week. Denver, CO: Exchange for Local Observations and Knowledge of the Arctic.
• Rainie, S. C., & Echo-Hawk, A. (2016, August). Nation Building for Wellness: Tribal Data Sovereignty for Healthy Indigenous Communities. National Tribal Forum for Excellence in Community Health Practice. Spokane, WA.
• Rainie, S. C., & Teufel-Shone, N. I. (2016, December). Center for Indigenous Environmental Health Research. Centers for Environmental Health Disparities Annual Meeting. Durham, NC: NIEHS, EPA, NIMHD.
• Rainie, S. C., Kahn, C., & Ore de Boehm, C. (2016, November). Nation Building for Tribal Wellness. Arizona Indian Education Youth Conference. Tucson, AZ.
• Rainie, S. C., Rodriguez-Lonebear, D., & Martinez, A. (2016, October). Indigenous Data Sovereignty: Making Open Data By and For Indigenous Peoples. Data + Indigenous Impact panel, International Open Data Conference IODC2016. Madrid, Spain.
• Rainie, S. C., Rodriguez-Lonebear, D., & Martinez, A. (2016, October). Indigenous Data Sovereignty: Making Open Data By and For Indigenous Peoples. Indigenous Open Data Summit, International Open Data Conference IODC2016. Madrid, Spain.
• Rainie, S. C., Rodriguez-Lonebear, D., & Martinez, A. (2016, October). Indigenous Data Sovereignty. A Presentation for Continuing Education Units to the U.S. Government Accountability OfficeGovernment Accountability Office, US.
• Rainie, S. C., Rodriguez-Lonebear, D., Martinez, A., Kukutai, T., & Sporle, A. (2016, October). "Data + Indigenous” Impact Panel. International Open Data Conference IODC2016. Madrid, Spain: International Open Data Conference.
• Rodriguez-Lonebear, D., & Rainie, S. C. (2016, May). Data Building is Nation Building: US Indigenous Data Sovereignty. In Pursuit of Indigenous Data Sovereignty: Directions and Challenges panel, Native American and Indigenous Studies Association Annual Meeting. Honolulu, HI.
• Rainie, S. C. (2015, May). Indigenous Data Governance and Open Data Futures. Indigenous Data and Open Governments Panel, 3rd International Open Data Governance Conference. Ottawa, ON: Canadian Government.
• Rainie, S. C., & Stull, G. (2015, December). Reframing Return on Investments for Tribal Colleges and Universities: Aligning Analyses with Tribal Priorities and Educations Missions. National Minority Serving Institutions Return on Investment Convening. Princeton, NJ: Penn Center for MSIs, Educational Testing Service.
• Schultz, J. L., Starks, R. R., & Rainie, S. C. (2015, June). Residence, Citizenship, and Connectedness for Young Adult American Indians. National Congress of American Indians Mid-Year Conference Policy Research Center’s Tribal Leaders/Scholars Forum sessions "Connecting Across Distance & Difference: Tribal Citizenship in a New Era,". St. Paul, MN.
• Rainie, S. C., & Schultz, J. L. (2014, June). The Strategic Power of Data: A Key Aspect of Sovereignty. National Congress of American Indians Mid-Year Conference Policy Research Center’s Tribal Leaders/Scholars Forum. Anchorage, AK.
• Rainie, S. C., & Schultz, J. L. (2014, November). The Strategic Power of Data: A Key Aspect of Sovereignty. 6th Biennial International Indigenous Development Research Conference 2014. Auckland, New Zealand.

Poster Presentations

• Martinez, A., & Carroll, S. R. (2019, December). Indigenous Data Sovereignty Summit in Arizona: Building Shared Understanding and Identifying Tribal Leaders Needs. PA51E-0926: Science to Action: Transformative Partnerships to Advance Decision-Relevant Science II Posters session at the American Geophysical Union Conference. San Francisco, CA: American Geophysical Union.
• David-Chavez, D., Rainie, S. C., Ferguson, D. B., LeRoy, S., Curley, A., Lane, T., & Yazzie, S. (2018, December). Supporting Tribal Data Governance for Community Climate Resilience: A Southwest Indigenous Climate Summit. PA43C: Indigenous Data Sovereignty: How Scientists and Researchers Can Empower Indigenous Data Governance session at the American Geophysical Union Confe. Washington DC.
• Martinez, A., & Rainie, S. C. (2018, December). Using Data Sharing Agreements as Tools of Indigenous Data Governance: Current Uses and Future Options. PA43C: Indigenous Data Sovereignty: How Scientists and Researchers Can Empower Indigenous Data Governance session at the American Geophysical Union Conference. Washington DC.
• Rainie, S. C., Ferguson, D. B., & Martinez, A. (2017, December). The Role of Reconciling Values in Efforts to Build Community Resilience to Global Environmental Change. American Geophysical Union Conference. New Orleans, LA.
• Rainie, S. C. (2015, June). Indigenous Community Wellness: Reimagining Indigenous Health. National Congress of American Indians Mid-Year Conference Policy Research Center’s Tribal Leaders/Scholars Forum. St. Paul, MN.
• Rainie, S. C., Cornell, S. E., Jorgensen, M. R., Starks, R. R., & Grogan, M. (2014, March). Self Determination and American Indian Health Care: The Shift to Tribal Control. Good Native Governance: Innovative Research in Law, Education, and Economic Development Conference. Los Angeles, CA.
• Schultz, J. L., Corral, S., Jorgensen, M. R., & Rainie, S. C. (2014, June). Women and Work: Gender and Employment in American Indian Nations 1990-2010. National Congress of American Indians Mid-Year Conference Policy Research Center’s Tribal Leaders/Scholars Forum. Anchorage, AK.
• Schultz, J. L., Corral, S., Jorgensen, M. R., & Rainie, S. C. (2014, March). Women and Work: Gender and Employment in American Indian Nations 1990-2010. Good Native Governance: Innovative Research in Law, Education, and Economic Development Conference. Los Angeles, CA.

Others

• Carroll, S. R., & Hudson, M. (2019, September). CARE Principles for Indigenous Data Governance.. The Global Indigenous Data Alliance. GIDA-global.org.. http://gida-global.org/care
• Carroll, S. R., & Martinez, A. (2019, December). Policy Brief: Indigenous Data Sovereignty in Arizona.. Tucson: Native Nations Institute, University of Arizona and the Inter Tribal Council of Arizona..
• David-Chavez, D., Ferguson, D. B., Curley, A., Lane, T., Yazzie, S., White, S., & Carroll, S. R. (2019, December). Dominique David-Chavez, Daniel B. Ferguson, Andrew Curley, Travis Lane+, Sheldwin Yazzie, Sarah White,Policy Brief: Supporting Tribal Data Governance for Indigenous Community Climate Resilience.. Tucson: Native Nations Institute and Climate Assessment for the Southwest, University of Arizona..
• Walter, M., Rodriguez-Lonebear, D., & Carroll, S. R. (2019, September). Onati Indigenous Data Sovereignty (ID-SOV) Communique. Te Mana Raraunga, United State Indigenous Data Sovereignty Network, Maiam nayri Wingara, The Global Indigenous Data Alliance. GIDA-global.org..
• Rainie, S. C., Rodriguez-Lonebear, D., & Martinez, A. (2017, December). Policy Brief: Indigenous Data Sovereignty in the United States. Tucson: Native Nations Institute University of Arizona.
• Rainie, S. C., Rodriguez-Lonebear, D., & Martinez, A. (2017, May). Policy Brief: Data Governance for Native Nation Rebuilding (Version 2). Tucson: Native Nations Institute University of Arizona.
• Schultz, J. L., Starks, R. R., & Rainie, S. C. (2015, July). Residence, Community Engagement, and Citizenship: How Do Non-Resident Tribal Citizens Connect with Native Nations. http://nni.arizona.edu/pdfs/offrezsummaryreport.pdf
  More info

  Schultz, Jennifer Lee, Stephanie Carroll Rainie, & Rachel Rose Starks. (2015). Residence, community engagement, and citizenship: How do non-resident tribal citizens connect with Native nations. Tucson, AZ: Native Nations Institute. Retrieved from http://nni.arizona.edu/pdfs/offrezsummaryreport.pdf