Stephanie Russo Carroll

Interests

Teaching

American Indian, Alaska Native, Indigenous health policy,data governance

Research

health and the environment, climate change, governance, American Indian, Alaska Native, Indigenous, sovereignty, community wellness, community development

Courses

Scholarly Contributions

Books

• Walter, M., Kukutai, T., Carroll, S. R., & Rodriguez-Lonebear, D. (2021). Indigenous Data Sovereignty and Policy. Oxford: Routledge.

Chapters

• Walter, M., & Carroll, S. R. (2021). Chapter 1: Indigenous Data Sovereignty, Governance and the Link to Indigenous Policy. In Indigenous Data Sovereignty and Policy. Oxford: Routledge.
• Walter, M., Carroll, S. R., Kukutai, T., & Rodriguez-Lonebear, D. (2021). Chapter 14: Embedding systemic change--opportunties and challenges. In Indigenous Data Sovereignty and Policy. Oxford: Routledge.
• Kukutai, T., Carroll, S. R., & Walter, M. (2020). Indigenous Data Sovereignty,” in Mamo, D. (Ed.). In The Indigenous World 2020 (34th Edition)(pp 654-662). Copenhagen, Denmark: International Work Group for Indigenous Affairs (IWGIA).
• Lovett, R., Lee, V., Kukutai, T., Cormack, D., Rainie, S. C., & Martin, J. (2019). Good Data Practices for Indigenous Data Sovereignty and Governance. In Good Data(pp 26-38). Amsterdam: Institute of Network Cultures.
• Rainie, S. C., Kukutai, T., Walter, M., Axelsson, P., Walker, J., & Figuaroa, O. (2019). Open Data & Indigenous Data Sovereignty. In The State of Open Data.
• Rainie, S. C., Kukutai, T., Walter, M., Axelsson, P., Walker, J., & Figuaroa, O. (2018). Public draft: Open Data & Indigenous Data Sovereignty. In The State of Open Data.

Journals/Publications

• Hiraldo, D., James, K., & Carroll, S. R. (2021). Indigenous Sovereignty in a Pandemic: Tribal Codes in the United State as Preparedness. Frontiers in Sociology, 6.
• Jones, K. M., Cook-Deegan, R., Rotimi, C. N., Callier, S. L., Bentley, A. R., Stevens, H., Phillips, K. A., Jansen, J. P., Weyant, C. F., Roberts, D. E., Zielinski, D., Erlich, Y., Garrison, N. A., Carroll, S. R., Ossorio, P. N., Moreau, Y., & Wang, M. (2021). Complicated legacies: The human genome at 20. Science (New York, N.Y.), 371(6529), 564-569.
• Austin, C. C., Bernier, A., Bezuidenhout, L., Bicarregui, J., Biro, T., Cambon-Thomsen, A., Carroll, S. R., Cournia, Z., Dabrowski, P. W., Diallo, G., Duflot, T., Garcia, L., Gesing, S., Gonzalez-Beltran, A., Gururaj, A., Harrower, N., Lin, D., Medeiros, C., Méndez, E., , Meyers, N., et al. (2020). Fostering global data sharing: highlighting the recommendations of the Research Data Alliance COVID-19 working group. Wellcome open research, 5, 267.
  More info

  The systemic challenges of the COVID-19 pandemic require cross-disciplinary collaboration in a global and timely fashion. Such collaboration needs open research practices and the sharing of research outputs, such as data and code, thereby facilitating research and research reproducibility and timely collaboration beyond borders. The Research Data Alliance COVID-19 Working Group recently published a set of recommendations and guidelines on data sharing and related best practices for COVID-19 research. These guidelines include recommendations for researchers, policymakers, funders, publishers and infrastructure providers from the perspective of different domains (Clinical Medicine, Omics, Epidemiology, Social Sciences, Community Participation, Indigenous Peoples, Research Software, Legal and Ethical Considerations). Several overarching themes have emerged from this document such as the need to balance the creation of data adherent to FAIR principles (findable, accessible, interoperable and reusable), with the need for quick data release; the use of trustworthy research data repositories; the use of well-annotated data with meaningful metadata; and practices of documenting methods and software. The resulting document marks an unprecedented cross-disciplinary, cross-sectoral, and cross-jurisdictional effort authored by over 160 experts from around the globe. This letter summarises key points of the Recommendations and Guidelines, highlights the relevant findings, shines a spotlight on the process, and suggests how these developments can be leveraged by the wider scientific community.
• Carroll, S. R., Chung, P., Cormack, D., Hudson, M., Kukutai, T., Rowe, R., Sara, R., Suina, M., & Walter, M. (2020). Data sharing respecting Indigenous data sovereignty. Research Data Alliance COVID-19 Working Group Recommendations and guidelines on data sharing. doi:https://doi.org/10.15497/rda00052
• Carroll, S. R., Garba, I., Figueroa-Rodriguez, O. L., Holbrook, J., Lovett, R., Materrechera, S., Parsons, M., Raseroka, K., Rodriguez-Lonebear, D., Rowe, R. K., Sara, R., Walker, J. D., Anderson, J., & Hudson, M. (2020). CARE Principles for Indigenous Data Governance. Data Science Journal, 19(43), 1–12. doi:https://doi.org/10.5334/dsj-2020-043
• Carroll, S. R., Rodriguez-Lonebear, D., Akee, R., Lucchesi, A., & Richards, J. R. (2020). Indigenous Data in the COVID-10 Pandemic: Straddling Erasure, Terrorism, and Sovereignty. Items: Insights from the Social Sciences, Social Science Research Council.
• Garrison, N. A., Carroll, S. R., & Hudson, M. (2020). Entwined Processes: Rescripting Consent and Strengthening Governance in Genomics Research with Indigenous Communities. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics, 48(1), 218-220.
• Hudson, M., Garrison, N. A., Sterling, R., Caron, N. R., Fox, K., Yracheta, J., Anderson, J., Wilcox, P., Arbour, L., Brown, A., Taualii, M., Kukutai, T., Haring, R., Te Aika, B., Baynam, G. S., Dearden, P. K., Chagné, D., Malhi, R. S., Garba, I., , Tiffin, N., et al. (2020). Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data. Nature reviews. Genetics, 21(6), 377-384.
  More info

  Addressing Indigenous rights and interests in genetic resources has become increasingly challenging in an open science environment that promotes unrestricted access to genomic data. Although Indigenous experiences with genetic research have been shaped by a series of negative interactions, there is increasing recognition that equitable benefits can only be realized through greater participation of Indigenous communities. Issues of trust, accountability and equity underpin Indigenous critiques of genetic research and the sharing of genomic data. This Perspectives article highlights identified issues for Indigenous communities around the sharing of genomic data and suggests principles and actions that genomic researchers can adopt to recognize community rights and interests in data.
• Johnson, N., Jäger, M. B., Jennings, L., Juan, A., Carroll, S. R., & Ferguson, D. B. (2020). Indigenous Foods Knowledges Network: Facilitating Exchange between Arctic and Southwest Indigenous Communities on Food and Knowledge Sovereignty. Witness Community Highlights. Fairbanks: ARCUS: Arctic Research Consortium of the United States.
• Rodriguez-Lonebear, D., Barceló, N. E., Akee, R., & Carroll, S. R. (2020). American Indian Reservations and COVID-19: Correlates of Early Infection Rates in the Pandemic. Journal of public health management and practice : JPHMP, 26(4), 371-377.
  More info

  To determine the household and community characteristics most closely associated with variation in COVID-19 incidence on American Indian reservations in the lower 48 states.
• Garrison, N. A., Barton, K. S., Porter, K. M., Mai, T., Burke, W., & Carroll, S. R. (2019). Access and Management: Indigenous Perspectives on Genomic Data Sharing. Ethnicity & disease, 29(Suppl 3), 659-668.
  More info

  As genomic researchers are encouraged to engage in broad genomic data sharing, American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions about ownership of data and biospecimens and concerns over emerging challenges and potential threats to tribal sovereignty. Using a community-engaged research approach, we conducted 42 semi-structured interviews with tribal leaders, clinicians, researchers, policy makers, and tribal research review board members about their perspectives on ethical issues related to genetics in AI/AN/NH communities. We report findings related to perspectives on genetic research, data sharing, and envisioning stronger oversight and management of data. In particular, participants voiced concerns about different models of data sharing, infrastructure and logistics for housing data, and who should have authority to grant access to data. The results will ultimately guide policy-making and the creation of guidelines and new strategies for tribes to drive the research agenda and promote ethically and culturally appropriate research.
• Garrison, N., Hudson, M., Ballentine, L., Garba, I., Martinez, A., Taualii, M., Arbour, L., Caron, N. R., & Rainie, S. C. (2019). Genomic Research through an Indigenous Lens: Understanding the Expectations. Annual Review of Genomics and Human Genetics, 20.
• Jäger, M. B., Behe, C., Ferguson, D. B., Huntington, O., Cora, A., Johnson, M. K., Johnson, N., Juan, A., Larson, S., Pulsifer, P., Reader, T., Strawhacker, C., Walker, A., Whiting, D., Wilson, J., Yazzie, J., & Rainie, S. C. (2019). Building an Indigenous Foods Knowledges Network Through Relational Accountability. Journal of Agriculture, Food Systems, and Community Development.
• Rainie, S. C., Rodriguez-Lonebear, D., & Martinez, A. (2019). Indigenous Data Governance: Strategies from United States Native Nations. Data Science Journal.
• Rainie, S. C., & Stull, G. (2017). Reframing Return on Investments for Tribal Colleges and Universities: Aligning Analyses with Tribal Priorities and Educational Missions. ETS Research Report Series, 18-26. doi:10.1002/ets2.12187
• Rainie, S. C., Schultz, J. L., Briggs, E., Riggs, P., & Palmanteer-Holder, N. L. (2017). Data as Strategic Resource: Self-Determination and the Data Challenge for United States Indigenous Nations. The International Indigenous Policy Journal.
• Rainie, S. C., Jorgensen, M. R., Cornell, S. E., & Arsenault, J. (2015). The Changing Landscape of Health Care Provision to American Indian Nations. American Indian Culture and Research Journal, 9(1), 1-23. doi:http://dx.doi.org/10.17953/aicr.39.1.j1u030g668113403
• Schultz, J. L., Starks, R. R., & Rainie, S. C. (2015). Residence, Community Engagement, and Citizenship: How Do Non-Resident Tribal Citizens Connect with Native Nations.
  More info

  Schultz, Jennifer Lee, Stephanie Carroll Rainie, & Rachel Rose Starks. (2015). Residence, community engagement, and citizenship: How do non-resident tribal citizens connect with Native nations. Tucson, AZ: Native Nations Institute. Retrieved from http://nni.arizona.edu/pdfs/offrezsummaryreport.pdf
• De La Rosa, J. S., & Rainie, S. C. (2014). The Strategic Power of Data: A Key Aspect of Sovereignty. The International Indigenous Policy Journal , 5(1).
• Cornell, S. E., Jorgensen, M. R., Rainie, S. C., Record, I., Seelau, R., & Starks, R. R. (2008). Per capita distributions of American Indian tribal revenues: A preliminary discussion of policy considerations. Joint Occasional Papers on Native Affairs (JOPNA).
  More info

  Cornell, Stephen, Miriam Jorgensen, Stephanie Carroll Rainie, Ian Record, Ryan Seelau, & Rachel Rose Starks. (2008). Per capita distributions of American Indian tribal revenues: A preliminary discussion of policy considerations. Joint Occasional Papers on Native Affairs (JOPNA). Tucson, AZ and Cambridge, MA: Udall Center for Studies in Public Policy and Harvard Project on American Indian Economic Development.

Proceedings Publications

• Stull, G., & Rainie, S. C. (2016, Spring). Reframing Return on Investments for Tribal Colleges and Universities: Aligning Analyses with Tribal Priorities and Educational Missions. In National MSI Return on Investment Convening, Princeton: ETS and PENN Center for Minority Serving Institutions.

Presentations

• Carroll, S. R. (2021, February). The CARE Principles for Indigenous Data Governance. Bringing Together Indigenous & Western Ways of Coastal & Ocean Observing SeriesCanadian Integrated Ocean Observing System (CIOOS) Atlantic.
• Carroll, S. R. (2021, February). The CARE Principles for Indigenous Data Governance. Operationalising the CARE Principles for Indigenous Data Governance WebinarOCLC-National and State Libraries Australia (NSLA).
• Carroll, S. R. (2021, January). The CARE Principles for Indigenous Data Governance. Online Consultation for Indigenous Peoples on the UNESCO Recommendation on Open Science.
• Anderson, J., & Carroll, S. R. (2020, February). The CARE Principles and Biocultural (BC) Labels. NYU Public Interest Technology Alliance Launch. New York, NY: New York University.
• Beamer, P., Chief, K., & Carroll, S. R. (2020, November). Tó’Łítso, the water is yellow: Investigating short-term exposure and risk perception of Navajo communities to the Gold King Mine Toxic Spill: Project Update. Annual Grantees Meeting of the NIH/EPA Centers of Excellence on Environmental Health Disparities Research.
• Carroll, S. R. (2020, April). "The CARE Principles for Indigenous Data Governance” at the Joint Session of the International Indigenous Data Sovereignty Interest Group and the FAIR Data Maturity Model Working Group “Operationalising Be FAIR and CARE”. Research Data Alliance 15th Plenary.
• Carroll, S. R. (2020, April). The Significance of Indigenous Data Sovereignty for Climate Resilience. “Perspective on observing needs focused on Indigenous, private sector and science needs” Panel at the Arctic Observing Summit.
• Carroll, S. R. (2020, April). The Significance of Indigenous Data Sovereignty. Women in Data Science (WiDS) Tucson Virtual Conference, University of Arizona.
• Carroll, S. R. (2020, August). GIDA-RDA COVID-19 Guidelines for Data Sharing Respecting Indigenous Data Sovereignty. “Understanding the Impact of the RDA COVID-19 Recommendations and Guidelines on Data Sharing” webinar hosted by the United States Research Data Alliance.
• Carroll, S. R. (2020, August). Indigenous Data Sovereignty and the CARE Principles for Indigenous Data Governance. Indigenous Data Sovereignty: Activating Policy and Practice Webinar. Co-hosted by ORCID, the US Indigenous Data Sovereignty Network, and the Global Indigenous Data Alliance.
• Carroll, S. R. (2020, December). Eclipsing Equity, Indigenous Peoples Sovereignty, Data, and Research. National Academy of Medicine “Advancing Health Equity Science, Practice & Outcomes” Culture of Health Program Virtual Listening Workshop.
• Carroll, S. R. (2020, December). Indigenous Peoples’ Rights and Interests in Data. “2020 Reflections: Collaboration within Public Health and Environmental Justice” WebinarEnvironmental and Public Policy Section, Association for Conflict Resolution.
• Carroll, S. R. (2020, December). “The CARE Principles for Indigenous Data Governance,” at the “Indigenous Data Sovereignty” Main Session and Lightening Talks. GEO Indigenous Summit.
• Carroll, S. R. (2020, February). Enhancing Genomic Research in the US Through the Lens of Indigenous Data Sovereignty. Innovation Policy Colloquium,. New York, NY: New York University School of Law.
• Carroll, S. R. (2020, February). Responsibilities for the Stewardship of Indigenous Data in Open Science. Indigenous Voices SeriesInternational Society for Computational Biology.
• Carroll, S. R. (2020, July). Sovereignty and Governance for Indigenous Data Futures. American Indian and Alaska Native (AIAN) Data Sovereignty Webinar Series. Hosted by the AIAN-Clinical Translational Research Program (CTRP).
• Carroll, S. R. (2020, July). Sovereignty and Governance for Indigenous Data Futures. Health Sciences Summer Research Intensive, Dine College and the University of Arizona.
• Carroll, S. R. (2020, July). Sovereignty and Governance for Indigenous Data Futures. RII Achieving Racial Equity – Data Driven Solutions Meeting, University of Arizona.
• Carroll, S. R. (2020, June). "Indigenous Rights and Interests” on the Perspectives on Engaging Disproportionately Affected Communities Panel. The Role of Science Communication in Addressing the Disproportionate Effects of COVID-19 on Vulnerable Populations Open Session. Hosted by the National Academies of Science, Engineering and Medicine Standing Committee on Advancing Science Communication Research and Practice.
• Carroll, S. R. (2020, June). "The Significance of Indigenous Data Sovereignty and Governance” in the Digital Value, Data Rights, Extractivism & Indigenous Knowledge Panel. CODATA Center of Excellence in Data for Society at the University of Arizona (CEDS) MiniForum at the Extraction: Tracing the Veins virtual conference. Co-hosted by Massey University, New Zealand and Wageningen University and Research, The Netherlands.
• Carroll, S. R. (2020, June). The CARE Principles for Indigenous Data Governance. Indigenous Data Sovereignty: Tools for Transparency Virtual Workshop. Co-hosted by ORCID, DataCite, the US Indigenous Data Sovereignty Network, and the Global Indigenous Data Alliance.
• Carroll, S. R. (2020, June). The Significance of Indigenous Data Sovereignty and Governance for Hackathons. GEO Indigenous Hack4COVID-19.
• Carroll, S. R. (2020, March). The Significance of Indigenous Data Sovereignty and Governance. Keynote Plenary at the Arctic Observing Summit.
• Carroll, S. R. (2020, March). The Significance of Indigenous Data Sovereignty and Governance. “What if we design for plurality?” Panel at the IAM (Internet Age Media) Weekend “The Weirdness of Interdependency” Virtual Conference.
• Carroll, S. R. (2020, May). The CARE Principles for Indigenous Data Governance. Access to Indigenous Data: Integrating Community, Individual, and Analyst Interests Virtual Workshop. Co-hosted by ORCID, DataCite, the US Indigenous Data Sovereignty Network, and the Global Indigenous Data Alliance.
• Carroll, S. R. (2020, November). "Operationalizing the CARE Principles for Indigenous Data Governance in Research Data Environments" at the “Indigenous Data Sovereignty and Governance in the Americas” Plenary Session. Research Data Alliance Virtual 16th Plenary.
• Carroll, S. R. (2020, November). “GIDA-RDA COVID-19 Guidelines for Data Sharing Respecting Indigenous Data Sovereignty,” at the “RDA Adoption Opportunities and Highlights” Plenary Session. Research Data Alliance Virtual 16th Plenary.
• Carroll, S. R. (2020, November). “Indigenous Peoples’ Rights and Interests in Data,” at the “Indigenous Data Sovereignty” Paneel. Online Indigenous Mapping Workshop.
• Carroll, S. R. (2020, October). Indigenous Data Governance. Data and Research Priorities for Southwest Tribal Climate Resilience SummitCo-hosted by the Native Nations Institute, the Southwest Climate Adaptation Science Center, Climate Assessment for the Southwest, and the Indigenous Foods Knowledges Network with funding from the Inter Tribal Council of Arizona and the Bureau of Indian Affairs.
• Carroll, S. R. (2020, September). Operationalizing the CARE Principles for Indigenous Data Governance in Research Data Management. NNLM Network of the National Library of Medicine Research Data Management Webinar and Training (MLA CE) Series.
• Carroll, S. R. (2020, September). Operationalizing the CARE Principles for Indigenous Data Governance in Research. Genetic Genomics and Ethics for Native (GEN) Students Program at Oklahoma State University Indigenous Research Impact Series.
• Carroll, S. R., & Anderson, J. (2020, August). Operationalizing the CARE Principles for Indigenous Data Governance. OCLC Webinar.
• Carroll, S. R., & Hudson, M. (2020, October). CARE Principles and Open Data Post COVID. Consultation on the Post COVID-19 implications on collaborative governance of genomics research, innovation and genetic diversity workshopUN FAO, Secretariat of the International Treaty on Plant Genetic Resources, in partnership with CIRAD and the Center for Science, Technology and Environmental Policy Studies, Arizona State University.
• Carroll, S. R., Rodriguez-Lonebear, D., & Ellenwood, C. (2020, April). The Significance of Indigenous Data Sovereignty for Funders. International Funders for Indigenous Peoples, online webinar.
• Figueroa-Rodríguez, O., Hudson, M., & Carroll, S. R. (2020, July). CARE Principles for Indigenous Data Governance. RightsCon Online 2020 Conference.
• Garrison, N., Rodriquez-Lonebear, D., Hiratsuka, V., Hall, D., Carroll, S. R., & Garba, I. (2020, November). Tribal sovereignty and research ethics: a review of US Tribal legislation. 9th Biennial International Indigenous Research Conference. Auckland, New Zealand: Ngā Pae o te Māramatanga (NPM), Māori Centre of Research Excellence, University of Auckland.
• Neylong, C., Dillo, I., Ntoimo, L., Carroll, S. R., Parsons, M., & Garcia Castro, L. J. (2020, August). Present and Future of FAIR: Plenary 2 Panel C. FORCE11 Scholarly Communication Institute FSCI 2020 Plenary Series.
• Simons, N., Lujano, I., Carroll, S. R., & Wyborn, L. (2020, August). Present and Future of FAIR: Plenary 2 Panel. FORCE11 Scholarly Communication Institute FSCI Plenary Series.
• Carroll, S. R. (2019, April). The Significance of Indigenous Data Sovereignty. Indigenous Data Sovereignty Summit in Arizona. Phoenix, AZ.
• Carroll, S. R. (2019, July). The Significance of Indigenous Data Sovereignty”. Border Latino and American Indian Summer Exposure to Research (BLAISER). Tucson, AZ: University of Arizona College of Medicin.
• Carroll, S. R. (2019, May). Indigenous Data Sovereignty and Genomics Research. Indigenous Initiatives in Genome Research Workshop. New York City, NY: Nature Research Publications.
• Carroll, S. R. (2019, November). Indigenous in the Academy: Sovereignty, Responsibility, and Research. The Partnership for Native American Cancer Prevention “My Journey” Seminar Series, University of Arizona.
• Carroll, S. R., & Hudson, M. (2019, July). The CARE Principles for Indigenous Data Governance. International Law, The United Nations Declaration of the Rights of Indigenous Peoples and Indigenous Data Sovereignty Workshop. Oñati, Spain.
• Carroll, S. R., & Joseph, C. N. (2019, June). Implications of Indigenous Data Sovereignty for Public Health Tracking. Environmental Public Health Tracking in Tribal Lands. [Host: Arizona Department of Health Services and the Center for Disease Control].
• Carroll, S. R., Jager, M. B., & David-Chavez, D. (2019, May). The Significance of Indigenous Data Sovereignty and Governance. American Indian and Alaska Native Working Group Meeting. webinar: National Aeronautics and Space Administration.
• Cormack, D., Kukutai, T., Carroll, S. R., & Walter, M. (2019, September). Indigenous responses to datafication and data colonialism: Indigenous Data Sovereignty movements in Aotearoa New Zealand, Australia and the United States (A-318). 3rd Data Power Conference. Bremen, German.
• Jennings, L., Jäger, M. B., Johnson, N., & Carroll, S. R. (2019, December). The Indigenous Foods Knowledges Network: Building Indigenous Led Collaborations across Biomes. American Geophysical Union Fall Conference PA54A Growing Pains: Overcoming Obstacles and Working Together to Improve Research Collaboration in Science I Session. San Francisco, CA: American Geophysical Union Conference.
• Carroll, S. R. (2018, October). Indigenous data sovereignty: An Update from the Field. University of New Mexico Tribal Data Champions. Albuquerque, NM.
• Cormack, D., Kukutai, T., Rainie, S. C., & Walter, M. (2018, May). Indigenous Responses to Datafication: Indigenous Data Sovereignty Movements. Data Justice 2018: Exploring Social Justice in and Age of Datafication. Cardiff.
• Garcia, J., Echohawk, A., Rainie, S. C., Rodriguez-Lonebear, D., & Suina, M. (2018, June). The Governance of Indigenous Data: Generating a Framework and Principles. National Congress of American Indian Policy Research Center Pre-Conference Data Institute. Kansas City.
• Jennings, L., David-Chavez, D., & Rainie, S. C. (2018, October). Indigenous Data Sovereignty: How Scientists and Researchers Can Empower Indigenous Data Governance. American Indian Science and Engineering Society National Conference. Oklahoma City.
• Rainie, S. C. (2018, Fall). Indigneous Data Sovereignty & Open Data. International Open Data Conference. Buenos Aires.
• Rainie, S. C. (2018, Fall). Stewarding Indigenous Data: Resolving Tensions between Open Data and Indigenous Data Sove. University of Arizona Open Access Week: Should Research Data Always Be Open?. Tucson, AZ: University of Arizona Libraries.
• Rainie, S. C. (2018, November). Updates from the US Indigenous Data Sovereignty Network. “Indigenous Data Sovereignty in the Global South, Rural areas, and Developing Countries” International Indigenous Data Sovereignty Interest Group session at the Research Data Alliance Plenary part of International Data Week. Gaborone, Botswana.
• Rainie, S. C. (2018, Summer). Indigenous Data Sovereignty: How Scientists and Researcher Can Empower Data Governance. Earth Science Information Partners 2018 Summer Meeting. Tucson, AZ.
• Rainie, S. C. (2018, Summer). Reclaiming Indigenous Wellbeing: Health and Healthcare for Native Americans. Border Latino and American Indian Summer Exposure to Research (BLAISER), University of Arizona College of Medicine.
• Rainie, S. C., & Rodriguez-Lonebear, D. (2018, March). Indigenous Data Sovereignty: RDA Recommendations for Indigenous Data Governance. Research Data Alliance 11th Plenary. Berlin.
• Rainie, S. C., & Walter, M. (2018, November). An Introduction to Indigenous Data Sovereignty and its Implications for the Governance of Indigenous Data. “Indigenous Data Sovereignty: Science, Research, and the Governance of Indigenous Data” panel at the Scientific Data Conference part of International Data Week. Gaborone, Botswana.
• Rainie, S. C., & Zuniga Aponte, A. G. (2018, September). "Indigenous Data Sovereignty” presentation at the Indigenous Data Sovereignty Big Picture Session. International Open Data Conference. Buenos Aires.
• Rainie, S. C., Ferguson, D. B., & Martinez, A. (2018, December). Resilience, Sustainability, and Indigenous Communities: Knowledges in Dialogue for Environmental Research, Assessment, and Planning (Abstract ID 399127). PA53A: Native Science to Action: How Indigenous Perspectives Inform, Diversify, and Build Capacity in Environmental Science and Policy I session at the American Geophysical Union Conference. Washington DC.
• Rainie, S. C., Jennings, L., & Begay, R. (2018, April). Indigenous Data Sovereignty: How Scientists and Researchers Can Empower Indigenous Data Governance. American Indian Science and Engineering Society Region 3 Conference. Tucs.
• Rainie, S. C., Li, J., & Villatoro, D. (2018, Fall). "Indigenous Data Sovereignty" presentad at the Data + Indigenous Impact Session. International Open Data Conference 2018. Buenos Aires.
• Rainie, S. C., Strawhacker, C., Johnson, N., Pulsifer, P., Ferguson, D. B., Reader, T., Jäger, M. B., & Huntington, O. (2018, December). The Indigenous Foods Knowledges Network: Supporting Indigenous Scholars through Research and Academic Innovations (Abstract ID 451206). ED13A: From Either/or to Yes/and: Increasing Indigenous Participation in Science by Simultaneously Cultivating STEM and Cultural Identities II session at the American Geophysical Union Conference. Washington DC.
• Walker, J., Healy, B., Apsassin, T., Wadsworth, W., Jones, C., Reading, J., Lemchuk-Favel, L., Lovett, R., Cormack, D., Rainie, S. C., Rodriguez-Lonebear, D., & Rowe, R. (2018, September). Perspectives on Linkage Involving Indigenous Data Sovereignty. International Population Data Linkage Conference. Banff.
• Jorgensen, M. R., & Rainie, S. C. (2017, July). Data Initiatives at the University of Arizona and the Harvard Project. Data for Indian Economic Development Workshop. Tucson, AZ: Tribal-Interior Budget Council (TIBC), Department of Interior.
• Rainie, S. C. (2017, February). Center for Indigenous Environmental Health Research. Convening for Indigenous Australian Scholars, The University of Arizona. Tucson, AZ: Global Initiatives, University of Arizona.
• Rainie, S. C. (2017, February). Nation Building for Wellness: Tribal Data Sovereignty for Healthy Indigenous Communities. Community, Environment and Policy Department Meeting. Tucson, AZ: Mel and Enid Zuckerman College of Public Health, The University of Arizona.
• Rainie, S. C. (2017, October). Data Governance: Towards Indigenous Data Sovereignty.. Victoria Aboriginal Community Controlled Health Organization, Inc., Members Meeting. Lakes Entrance, VIC, Australia.
• Rainie, S. C., & Martinez, A. (2017, June). Indigenous Data Sovereignty: Opportunities for Tribal/Federal Collaboration. Society of American Indian Government Employees “Standing Together” conference. Scottsdale, AZ.
• Rainie, S. C., & Rodriguez-Lonebear, D. (2017, June). United States Indigenous Nation Data Governance: Toward Data Sovereignty. National Congress of American Indians Policy Research Center Mid-Year Pre-Conference Data Partners Gathering. Uncasville, CT.
• Rainie, S. C., & Rodriguez-Lonebear, D. (2017, May). United States Indigenous Nation Data Governance: Toward Data Sovereignty. Policy Forum: The Governance of Indigenous Data. Los Angeles, CA: Native Nations Institute at the University of Arizona, the University of California Los Angeles, and the US Indigenous Data Sovereignty Network.
• Rainie, S. C., & Rodriguez-Lonebear, D. (2017, September). Introduction to Indigenous Data Sovereignty and Governance. International Indigenous Data Sovereignty Interest Group session, "Generating Principles and Best Practices in Indigenous Data Sovereignty" at the Research Data Alliance 10th Plenary. Montreal, Quebec.
• Rainie, S. C., Garrison, N., & Hudson, M. (2017, July). Indigenous Data Sovereignty: Research, Ethics, and Genetics. University of Arizona Summer Internship for Indigenous Peoples in Genetics (SING). Tucson, AZ.
• Rodriguez-Lonebear, D., & Rainie, S. C. (2017, June). Laying the Groundwork: Why Tribes Need Data and Research. “Building Tribal Data Infrastructure” breakout session as part of the National Congress of American Indians Policy Research Center’s Tribal Leaders/Scholars Forum “Sovereign Infrastructure: Building Our Communities through Our Values”. Uncasville, CT.
• Rainie, S. C. (2015, November). Co-Production of Knowledge and Research Process. Weaving Together Two Worlds: Alaska Fish and Wildlife Co-Management Forum. Fairbanks, AK: University of Alaska, Fairbanks.
• Rainie, S. C. (2016, October). Center for Indigenous Environmental Health Research. Land Recycling and New Tools for Creating Healthy Communities and Economic Growth Workshop. Tucson, AZ.
• Rainie, S. C. (2016, September). Indigenous Data and Information Sovereignty: Making Open Data Work for Indigenous Peoples. Research Data Alliance (RDA) Breakout Session, International Data Week. Denver, CO: Exchange for Local Observations and Knowledge of the Arctic.
• Rainie, S. C., & Echo-Hawk, A. (2016, August). Nation Building for Wellness: Tribal Data Sovereignty for Healthy Indigenous Communities. National Tribal Forum for Excellence in Community Health Practice. Spokane, WA.
• Rainie, S. C., & Teufel-Shone, N. I. (2016, December). Center for Indigenous Environmental Health Research. Centers for Environmental Health Disparities Annual Meeting. Durham, NC: NIEHS, EPA, NIMHD.
• Rainie, S. C., Kahn, C., & Ore de Boehm, C. (2016, November). Nation Building for Tribal Wellness. Arizona Indian Education Youth Conference. Tucson, AZ.
• Rainie, S. C., Rodriguez-Lonebear, D., & Martinez, A. (2016, October). Indigenous Data Sovereignty: Making Open Data By and For Indigenous Peoples. Data + Indigenous Impact panel, International Open Data Conference IODC2016. Madrid, Spain.
• Rainie, S. C., Rodriguez-Lonebear, D., & Martinez, A. (2016, October). Indigenous Data Sovereignty: Making Open Data By and For Indigenous Peoples. Indigenous Open Data Summit, International Open Data Conference IODC2016. Madrid, Spain.
• Rainie, S. C., Rodriguez-Lonebear, D., & Martinez, A. (2016, October). Indigenous Data Sovereignty. A Presentation for Continuing Education Units to the U.S. Government Accountability OfficeGovernment Accountability Office, US.
• Rainie, S. C., Rodriguez-Lonebear, D., Martinez, A., Kukutai, T., & Sporle, A. (2016, October). "Data + Indigenous” Impact Panel. International Open Data Conference IODC2016. Madrid, Spain: International Open Data Conference.
• Rodriguez-Lonebear, D., & Rainie, S. C. (2016, May). Data Building is Nation Building: US Indigenous Data Sovereignty. In Pursuit of Indigenous Data Sovereignty: Directions and Challenges panel, Native American and Indigenous Studies Association Annual Meeting. Honolulu, HI.
• Rainie, S. C. (2015, May). Indigenous Data Governance and Open Data Futures. Indigenous Data and Open Governments Panel, 3rd International Open Data Governance Conference. Ottawa, ON: Canadian Government.
• Rainie, S. C., & Stull, G. (2015, December). Reframing Return on Investments for Tribal Colleges and Universities: Aligning Analyses with Tribal Priorities and Educations Missions. National Minority Serving Institutions Return on Investment Convening. Princeton, NJ: Penn Center for MSIs, Educational Testing Service.
• Schultz, J. L., Starks, R. R., & Rainie, S. C. (2015, June). Residence, Citizenship, and Connectedness for Young Adult American Indians. National Congress of American Indians Mid-Year Conference Policy Research Center’s Tribal Leaders/Scholars Forum sessions "Connecting Across Distance & Difference: Tribal Citizenship in a New Era,". St. Paul, MN.
• Rainie, S. C., & Schultz, J. L. (2014, June). The Strategic Power of Data: A Key Aspect of Sovereignty. National Congress of American Indians Mid-Year Conference Policy Research Center’s Tribal Leaders/Scholars Forum. Anchorage, AK.
• Rainie, S. C., & Schultz, J. L. (2014, November). The Strategic Power of Data: A Key Aspect of Sovereignty. 6th Biennial International Indigenous Development Research Conference 2014. Auckland, New Zealand.

Poster Presentations

• Carroll, S. R. (2020, July). Discussant at the Data Values and Indigenous Knowledge Panel for the CODATA Center of Excellence in Data for Society at the University of Arizona (CEDS) MiniForum. Extraction: Tracing the Veins virtual conference. Co-hosted by Massey University, New Zealand and Wageningen University and Research, The Netherlands.
• Martinez, A., & Carroll, S. R. (2019, December). Indigenous Data Sovereignty Summit in Arizona: Building Shared Understanding and Identifying Tribal Leaders Needs. PA51E-0926: Science to Action: Transformative Partnerships to Advance Decision-Relevant Science II Posters session at the American Geophysical Union Conference. San Francisco, CA: American Geophysical Union.
• David-Chavez, D., Rainie, S. C., Ferguson, D. B., LeRoy, S., Curley, A., Lane, T., & Yazzie, S. (2018, December). Supporting Tribal Data Governance for Community Climate Resilience: A Southwest Indigenous Climate Summit. PA43C: Indigenous Data Sovereignty: How Scientists and Researchers Can Empower Indigenous Data Governance session at the American Geophysical Union Confe. Washington DC.
• Martinez, A., & Rainie, S. C. (2018, December). Using Data Sharing Agreements as Tools of Indigenous Data Governance: Current Uses and Future Options. PA43C: Indigenous Data Sovereignty: How Scientists and Researchers Can Empower Indigenous Data Governance session at the American Geophysical Union Conference. Washington DC.
• Rainie, S. C., Ferguson, D. B., & Martinez, A. (2017, December). The Role of Reconciling Values in Efforts to Build Community Resilience to Global Environmental Change. American Geophysical Union Conference. New Orleans, LA.
• Rainie, S. C. (2015, June). Indigenous Community Wellness: Reimagining Indigenous Health. National Congress of American Indians Mid-Year Conference Policy Research Center’s Tribal Leaders/Scholars Forum. St. Paul, MN.
• Rainie, S. C., Cornell, S. E., Jorgensen, M. R., Starks, R. R., & Grogan, M. (2014, March). Self Determination and American Indian Health Care: The Shift to Tribal Control. Good Native Governance: Innovative Research in Law, Education, and Economic Development Conference. Los Angeles, CA.
• Schultz, J. L., Corral, S., Jorgensen, M. R., & Rainie, S. C. (2014, June). Women and Work: Gender and Employment in American Indian Nations 1990-2010. National Congress of American Indians Mid-Year Conference Policy Research Center’s Tribal Leaders/Scholars Forum. Anchorage, AK.
• Schultz, J. L., Corral, S., Jorgensen, M. R., & Rainie, S. C. (2014, March). Women and Work: Gender and Employment in American Indian Nations 1990-2010. Good Native Governance: Innovative Research in Law, Education, and Economic Development Conference. Los Angeles, CA.

Others

• Carroll, S. R., Hudson, M., Holbrook, J., Materrechera, S., & Anderson, J. (2020, November). Working with the CARE principles: operationalizing Indigenous Data Governance. Ada Lovelace Institute. https://www.adalovelaceinstitute.org/operationalising-indigenous-data-governance/
• Hiraldo, D., Carroll, S. R., David-Chavez, D., Jager, M. B., & Jorgensen, M. R. (2020, March). Policy Brief: Native Nation Rebuilding Lessons for Tribal Research and Data Governance.. Tucson: Native Nations Institute, University of Arizona..
• Carroll, S. R., & Hudson, M. (2019, September). CARE Principles for Indigenous Data Governance.. The Global Indigenous Data Alliance. GIDA-global.org.. http://gida-global.org/care
• Carroll, S. R., & Martinez, A. (2019, December). Policy Brief: Indigenous Data Sovereignty in Arizona.. Tucson: Native Nations Institute, University of Arizona and the Inter Tribal Council of Arizona..
• David-Chavez, D., Ferguson, D. B., Curley, A., Lane, T., Yazzie, S., White, S., & Carroll, S. R. (2019, December). Dominique David-Chavez, Daniel B. Ferguson, Andrew Curley, Travis Lane+, Sheldwin Yazzie, Sarah White,Policy Brief: Supporting Tribal Data Governance for Indigenous Community Climate Resilience.. Tucson: Native Nations Institute and Climate Assessment for the Southwest, University of Arizona..
• Garba, I., David-Chavez, D., Ballantyne, L., Hudson, M., Garrison, N., & Carroll, S. R. (2019, October). Comments responding to Request for Information (RFI) soliciting additional input to the All of Us Research Program 2019 Tribal Consultation (Notice Number: NOT-PM-19-004).
• Walter, M., Rodriguez-Lonebear, D., & Carroll, S. R. (2019, September). Onati Indigenous Data Sovereignty (ID-SOV) Communique. Te Mana Raraunga, United State Indigenous Data Sovereignty Network, Maiam nayri Wingara, The Global Indigenous Data Alliance. GIDA-global.org..
• Rainie, S. C., Rodriguez-Lonebear, D., & Martinez, A. (2017, December). Policy Brief: Indigenous Data Sovereignty in the United States. Tucson: Native Nations Institute University of Arizona.
• Rainie, S. C., Rodriguez-Lonebear, D., & Martinez, A. (2017, May). Policy Brief: Data Governance for Native Nation Rebuilding (Version 2). Tucson: Native Nations Institute University of Arizona.